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Building equitable and trustworthy primary care data platforms: governance and interoperability lessons from France

WednesdayJuly 1st11:30 - 12:30253

David DARMON

Across Europe, fragmented primary care data limit the ability of health systems to promote equity, support population health surveillance, and sustain continuous quality improvement. While hospital-based data infrastructures are well developed, community-based primary care faces specific organisational, legal, and professional challenges. France has recently launched its first national, publicly governed primary care data platform (P4DP), grounded in professional autonomy, patient partnership, and responsible digital health. This experience provides transferable lessons for European countries seeking to develop trustworthy, interoperable, and human-centred primary care data platforms.By the end of this workshop, participants will be able to: Describe inclusive governance models that integrate clinicians, patients, researchers, and public institutions in primary care data platforms. Analyse common legal, technical, and cultural barriers to primary care data integration and identify pragmatic mitigation strategies. Use interoperability principles to support cross-border primary care research and learning health systems.The workshop is designed as a highly interactive learning session combining short expert inputs with participatory methods. Teaching approaches include a structured case study, facilitated small-group discussions, and plenary synthesis to promote peer learning and collective reflection across different European contexts. Case study presentation (20 minutes): Introduction to the French P4DP initiative, focusing on governance choices, regulatory pathways, interoperability strategy, and ethical considerations specific to primary care. Facilitated small-group discussions (20 minutes): Participants will explore challenges and solutions related to equity, professional engagement, patient involvement, and digital responsibility within their own national systems. Plenary synthesis (20 minutes): Groups will share key insights, leading to the identification of transferable principles, success factors, and opportunities for European collaboration in primary care data infrastructures.Participants will gain: A clear understanding of how primary care data platforms can strengthen equity, trust, and professional engagement. Practical governance and interoperability approaches adaptable across diverse European health systems. Concrete ideas for international collaboration and comparative primary care research using routine data.This workshop will support family physicians, researchers, policy-makers, and patient partners in developing shared, human-centred, and trustworthy approaches to primary care data infrastructures, contributing to stronger learning health systems across Europe.