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The paradox of proximity: re-centering equity, liberty, and humanism in primary diabetes care

Maria Teresa SILVA, Sheila Torquato HUMPHREYS and Miguel VIEIRA

As a first-generation doctor practicing in a community where chronic disease literacy is low and cultural norms heavily influence health choices, I often witness preventable complications arising from gaps in primary care engagement. This reflection examines the case of a 53-year-old woman—my relative—whose death from uncontrolled diabetes revealed systemic vulnerabilities and highlighted the need to re-emphasise equity, liberty, humanism, and fraternity in primary healthcare.The patient, a grandmother of three and an avid traveller, had long-standing diabetes but remained non-adherent to treatment. She rarely underwent blood tests, frequently consumed sweets, and regularly practiced prolonged fasting during festivals. Despite progressive symptoms such as fatigue and dyspnoea, she had no structured follow-up within primary care. She presented acutely with decompensated heart failure and required ICU admission for 15 days, ultimately succumbing to multi-organ deterioration. The case reflects how cultural autonomy, limited health understanding, and inadequate continuity of care can converge into preventable, life-threatening outcomes.This reflection is unique because it merges personal grief with professional analysis. As a first-generation physician, witnessing a preventable death within my own family illuminated how cultural norms and low health literacy converge to create barriers—even for those with direct access to a doctor. It exposes the paradox that proximity to medical knowledge does not always guarantee adherence.The case reinforced that equity in primary care extends beyond access to include culturally informed education, compassionate communication, and regular, proactive follow-up. It highlighted the importance of respecting autonomy while guiding behaviour change empathetically. Fraternity—shared community responsibility—emerged as a critical pillar in chronic disease prevention.This case illustrates persistent gaps in primary healthcare: inadequate screening, weak continuity of care, and limited contextual counselling around cultural rituals such as fasting. Strengthening primary care requires integrated chronic disease programmes, community-based diabetes education, and sustained doctor–patient relationships rooted in trust, humanism, and shared decision-making.This reflection advocates for fostering long-term doctor–patient relationships that blend scientific guidance with empathetic communication. By strengthening the pillars of liberty, equity, and fraternity, primary healthcare can prevent such tragedies. Ultimately, we must ensure that chronic disease management becomes a shared, supported journey rather than an isolated individual struggle.